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Parents’ perception of pediatric cancer centers in Japan
Insights
Parents of children with cancer seek better psychological support and accommodation. Centralizing pediatric cancer care is favored, but accessibility and support for remote families are key concerns.
Area of Science:
- Pediatric Oncology
- Healthcare Management
- Family Support Services
Background:
- Over 160 Japanese hospitals treat approximately 2500 pediatric cancer patients annually.
- Uneven distribution of advanced care capabilities due to resource and personnel limitations.
- Need to assess parental perspectives on centralized pediatric cancer care models.
Purpose of the Study:
- To gather parents' experiences with their child's cancer treatment.
- To understand parental opinions on centralizing medical resources to specialized pediatric cancer centers.
Main Methods:
- A structured questionnaire was distributed to parents of children undergoing cancer treatment.
- Analysis of 82 completed questionnaires.
Main Results:
- Identified significant needs for enhanced psychological support for pediatric cancer patients and their families.
- Parents expressed a need for improved family accommodation during treatment.
- While generally supportive of centralization, parents raised concerns about accessibility and the impact on families in remote areas.
Conclusions:
- Highlights the critical demand for comprehensive psychological care services for families navigating childhood cancer.
- Recommends improved accommodation, financial, and social support for families in remote regions as prerequisites for effective centralization of pediatric cancer centers.
Background:
In Japan, more than 160 hospitals provide care for approximately 2500 pediatric patients diagnosed with cancer each year. Not all hospitals, however, are fully capable of providing state-of-the-art care due to a lack of experienced personnel or up-to-date facilities. The aim of this study was to solicit parents’ experiences during their children’s cancer treatment and opinions about the centralization of medical resources to core pediatric cancer centers.
Methods:
A structured questionnaire was sent to parents of children who had received cancer treatment.
Results:
Eighty-two questionnaires were completed and analyzed. Parents reported a need for improved psychological support for their children and family members as well as accommodation for families during cancer therapy. Most parents had positive opinions about the centralization of medical resources to core centers but were concerned about the accessibility of the centers and increasing burdens placed on families living in remote areas.
Conclusion:
The demand for psychological care for families during children’s cancer treatment is highlighted. Improved accommodation and greater financial and social support for families living in remote areas should be preconditions for the future centralization of core pediatric cancer centers.
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