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Published on: October 13, 2016
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Needs assessments of memory disorder patients
Kate J Bowen1, Elizabeth W Gonzalez2, Carolyn Y Edwards3
1Department of Neurology, Drexel University College of Medicine, Philadelphia, PA, USA kbowen@drexelmed.edu.
Summary
Identifying patient and caregiver needs in memory disorders is crucial. Addressing these needs, such as sleep and exercise, can reduce caregiver stress and improve quality of life.
Area of Science:
- Gerontology
- Neuroscience
- Psychology
Background:
- Informal caregivers of individuals with memory disorders face significant financial, physical, and psychological challenges.
- Existing resources often fall short in mitigating the negative impacts of caregiving demands.
- Improved identification of patient and caregiver needs is hypothesized to enhance resource effectiveness.
Purpose of the Study:
- To determine the specific psychosocial needs of individuals with cognitive impairments and their informal caregivers.
- To inform the modification and improvement of support services for this population.
Main Methods:
- A one-page Needs Assessment tool was developed.
- The assessment targeted potential concerns for both the patient and the caregiver.
- Data was collected from 204 participants during outpatient clinic visits in Philadelphia.
Main Results:
- Key identified needs include assistance with sleep, exercise, access to clinical trials, and education.
- Support is also needed for activities of daily living (ADLs) and instrumental activities of daily living (IADLs).
Conclusions:
- The study successfully identified critical patient and caregiver needs.
- Further research is required to develop targeted services that meet these identified needs.
- Meeting patient needs through focused services can decrease caregiver burden, enhance homecare, and improve overall quality of life.
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