[Parental stress in children undergoing congenital heart surgery]

Muriel Ramírez L1, Paola Pino A1, Daniel Springmuller P1

  • 1Facultad de Medicina y Hospital Clínico, Pontificia Universidad Católica, Chile.

Insights

Parental stress is high for caregivers of children with congenital heart disease (CHD) undergoing cardiac surgery. Addressing patient, parent, and environmental factors, especially loss of parental role, can significantly reduce this stress.

Area of Science:

  • Pediatric Cardiology
  • Psychological Stress
  • Caregiver Support

Context:

  • Children with congenital heart disease (CHD) require cardiac surgery.
  • Caregivers experience significant stress during hospitalization and intensive care unit (ICU) stays.
  • Uncertainty regarding surgical outcomes exacerbates caregiver distress.

Purpose:

  • To review and identify factors contributing to parental stress in children with CHD undergoing cardiac surgery.
  • To highlight key stressors impacting caregivers during the perioperative period.
  • To inform the development of targeted support interventions.

Summary:

  • Parental stress factors are categorized into patient-related, parent-related, environmental, and clinical team-related aspects.
  • The most significant stressors include the loss of the parental role, the child's physical appearance, and their behavior in the ICU.
  • A pre-operative information program addressing these factors is crucial for stress reduction.

Impact:

  • Provides a framework for understanding and mitigating parental stress in pediatric cardiac surgery.
  • Emphasizes the need for comprehensive pre-operative information and support for caregivers.
  • Aims to improve the overall care experience for families navigating pediatric cardiac surgery.

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