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Maternal stress associated with juvenile idiopathic arthritis

Angela Cox1, Genevieve Ostring, Susan Piper

  • 1Monash Children's Hospital, Melbourne, Victoria, Australia; The Royal Children's Hospital, Melbourne, Victoria, Australia.

International Journal of Rheumatic Diseases
|June 5, 2014
PubMed

Insights

Maternal stress in juvenile idiopathic arthritis (JIA) is higher than in children with other chronic conditions. One-third of mothers caring for children with JIA require intervention for high stress levels.

Area of Science:

  • Pediatrics
  • Rheumatology
  • Child Psychology

Background:

  • Juvenile idiopathic arthritis (JIA) is a chronic condition affecting children.
  • Parental well-being is crucial for managing childhood chronic illnesses.
  • Limited data exists on maternal stress specifically in JIA compared to other pediatric chronic diseases.

Purpose of the Study:

  • To evaluate maternal stress levels in mothers of children diagnosed with JIA.
  • To compare these stress levels with those reported for mothers of children with other chronic childhood illnesses.

Main Methods:

  • Recruitment of mothers with JIA children (aged 2-12) from outpatient clinics.
  • Assessment of maternal stress using the Parenting Stress Index (PSI) Long Form.
  • Clinical data collection including joint counts and inflammatory markers.

Main Results:

  • Mothers of JIA children reported higher mean stress scores (235.4) compared to mothers of healthy children (222.8).
  • Stress levels in mothers of JIA children were also greater than those with children suffering from insulin-dependent diabetes mellitus (218.1) and profound deafness (221.7).
  • A significant proportion (one-third) of mothers exhibited total PSI scores above 260, indicating clinically relevant stress levels requiring intervention.

Conclusions:

  • Juvenile idiopathic arthritis (JIA) is a significant childhood illness.
  • Maternal stress associated with JIA is comparable to or greater than that seen in other chronic pediatric conditions.
  • Healthcare providers should recognize and address the substantial maternal stress burden in families affected by JIA.
Abstract

Keywords:
juvenile idiopathic arthritismaternal stressparental stress

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