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Pain, coping, and sleep in children and adolescents with sickle cell disease

Joyce Kelly Graves1, Eufemia Jacob

  • 1School of Nursing, University of California Los Angeles, Los Angeles, CA, USA.

Journal of Child and Adolescent Psychiatric Nursing : Official Publication of the Association of Child and Adolescent Psychiatric Nurses, Inc
|June 18, 2014
PubMed

Insights

Children with sickle cell disease (SCD) experience pain that impacts sleep and coping strategies. Nurses should assess pain, coping, and sleep concurrently to improve patient outcomes.

Area of Science:

  • Pediatric Hematology
  • Pain Management
  • Sleep Medicine

Background:

  • Sickle cell disease (SCD) is a chronic condition often associated with significant pain.
  • Pain in SCD can profoundly impact a child's quality of life, including sleep and coping mechanisms.

Purpose of the Study:

  • To investigate the interrelationships between pain, pain coping strategies, and sleep quality in children with SCD.
  • To identify demographic and clinical factors influencing pain, coping, and sleep in this population.

Main Methods:

  • A cross-sectional study involving 66 participants (39 children, 27 adolescents) with SCD.
  • Data collected using electronic visual analog scale (eVAS), Pain Coping Questionnaire, and Pittsburg Sleep Quality Index.

Main Results:

  • Two-thirds of participants reported pain; no significant associations found with age, gender, pain intensity, or frequency.
  • Common coping strategies included information seeking, problem-solving, and social support.
  • Significant negative correlations noted in males between pain severity and behavioral distraction/catastrophizing.
  • Over 91% experienced sleep disturbances, with 18.2% using sleep medication frequently.
  • No significant differences in sleep quality were associated with age, gender, pain intensity, or frequency.

Conclusions:

  • Pain in children with SCD significantly affects sleep patterns and coping behaviors.
  • Concurrent assessment of pain, coping, and sleep is crucial for effective nursing care.
  • Promoting sleep hygiene and positive coping strategies is recommended during painful episodes.
Abstract

Keywords:
Childrencopingpainsickle cell diseasesleep

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