Focus groups for developing a peer mentoring program to improve self-management in pediatric inflammatory bowel...

Area of Science:

• Pediatric gastroenterology
• Adolescent health
• Chronic disease self-management

Background:

• Inflammatory Bowel Disease (IBD) poses significant self-management challenges for pediatric patients.
• Peer mentoring may be a more effective self-management intervention for youth compared to parental or professional guidance.

Purpose of the Study:

• To identify key themes from focus groups to inform the development of a peer mentoring program.
• To improve self-management skills in pediatric patients with IBD.

Main Methods:

• Focus groups were conducted with adolescents (12-17 years), young adults (18-20 years), and parents of youth with IBD.
• Directed content analysis was used to analyze transcribed data based on predefined questions about program goals and characteristics.

Main Results:

• Participants prioritized program goals including support, role modeling, education, and recreational activities.
• Ideal program structure includes a year-long 1-on-1 peer mentorship, educational and non-IBD-focused fun activities, and monthly in-person contact.

Conclusions:

• Focus group suggestions align with established best practices for successful mentoring programs.
• An empirically supported peer mentoring program has the potential to effectively enhance self-management in youth with IBD.