Components and principles of a pediatric palliative care consultation: results of a Delphi study

Natalie Bradford1, Anthony Herbert, Christine Mott

  • 11 Centre for Online Health, University of Queensland , Royal Children's Hospital, Queensland, Australia .

Insights

Early pediatric palliative care consultations establish family rapport and focus on symptom management and care planning. This expert-defined framework guides practice, education, and research for high-quality child healthcare.

Area of Science:

  • Pediatric Medicine
  • Palliative Care
  • Healthcare Quality Improvement

Background:

  • Pediatric palliative care is a specialized field requiring multidisciplinary input for comprehensive care.
  • Early consultations, even when end-of-life care is not imminent, can build relationships and improve care quality.

Purpose of the Study:

  • To define the optimal components of an early pediatric palliative care consultation.
  • To establish a consensus-based framework for initial pediatric palliative care interactions.

Main Methods:

  • A five-round Delphi study involving 19 Australian experts in pediatric and palliative medicine.
  • Online surveys were used to prioritize components and principles derived from literature and existing standards.

Main Results:

  • Experts prioritized 34-36 components and principles for early consultations.
  • Key priorities included establishing family rapport, assessing understanding of palliative care, symptom management, emergency planning, and care location discussions.
  • Topics deferred to later consultations included spiritual issues, resuscitation, life-sustaining therapies, and end-of-life care.

Conclusions:

  • The study provides the first published expert consensus framework for early pediatric palliative care consultations.
  • This framework offers guidance for clinical practice, education, and research in pediatric palliative care.
Abstract

Related Concept Videos

Continuing Care01:25

Continuing Care

Continuing care describes the variety of health, personal, and social services provided over a prolonged period. The need for continuing care is increasing because people are living longer. Many people do not have families or others to care for them. Continuing care is mainly for patients who are disabled, functionally dependent, or suffering from a terminal disease. It is available within institutional settings or in homes. Examples include nursing centers or facilities, assisted living,...
1.8K
Ethical Dilemmas II01:30

Ethical Dilemmas II

Resolving an ethical dilemma in healthcare involves a systematic approach that considers every aspect of the issue, respecting both the patient's needs and values and the healthcare professional's ethical obligations. Here are potential steps to resolve an ethical dilemma:
2.6K
Ethical Issues01:27

Ethical Issues

Nurses are essential in patient care, upholding the ethical principles of their profession and effectively navigating ethical dilemmas. Neglecting ethical issues can lead to inadequate patient care, compromised therapeutic relationships, and moral distress among healthcare workers.
Ethical Concerns in Healthcare:
2.3K
Nursing Ethical Principles II01:27

Nursing Ethical Principles II

Ethical principles are essential in guiding nurses to fulfill their responsibilities, focusing on the quality of nursing care and decision-making. These principles, including autonomy, beneficence, non-maleficence, justice, and fidelity, shape the ethical framework within healthcare settings.
Consider the following scenario, which illustrates how these principles are applied in the care of Mr. John, a fifty-year-old teacher diagnosed with metastatic liver cancer.
Initially, Mr. John's...
2.3K
Patient-centered Care01:13

Patient-centered Care

Patient-centered care involves delivering care beyond inpatient hospitalization. Reflective practice can enhance a patient-centered approach. Reflective practice is a process of reasoning that considers all aspects of the present situation, including practicalities, learning from personal practice, and consideration of patient needs. Patients appreciate care decisions made while considering their input. Involving the patient in their care provides the patient with a sense of contribution rather...
3.1K
Pharmacokinetics in Pediatric Patients: Drug Distribution01:17

Pharmacokinetics in Pediatric Patients: Drug Distribution

Drug distribution in the pediatric population exhibits unique challenges and considerations due to the physiological differences between children, particularly neonates and infants, and adults. A crucial aspect of pediatric pharmacology is understanding how these differences impact the pharmacokinetics of various drugs, necessitating age-specific dosing strategies to ensure efficacy and safety.Neonates and infants have a higher total body water content, ~75%–90% of their body weight,...
547