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Evaluation of a multidimensional cystic fibrosis transition program: a quality improvement initiative

Anna M Gravelle1, Mary Paone2, A George F Davidson3

  • 1Cystic Fibrosis Clinic, British Columbia's Children's Hospital, Vancouver, BC, Canada.

Journal of Pediatric Nursing
|August 5, 2014
PubMed

Insights

Preparing youth with cystic fibrosis (CF) for the transition from pediatric to adult care is crucial. A quality improvement initiative enhanced this process through a clinical pathway, adult clinic collaboration, and readiness assessment, now considered best practice.

Area of Science:

  • Pediatric Healthcare
  • Transition Medicine
  • Quality Improvement

Background:

  • Cystic Fibrosis (CF) youth require specialized preparation for transitioning to adult healthcare.
  • Existing transition protocols may not adequately address the evolving needs of this population.
  • A structured approach is necessary to ensure seamless care transfer.

Purpose of the Study:

  • To describe the development of a multidimensional quality improvement initiative for CF patient transition.
  • To evaluate the effectiveness of specific interventions in preparing youth for adult healthcare.
  • To establish best practices for healthcare transition in CF.

Main Methods:

  • Sequential implementation and evaluation of three key interventions.
  • Development of a patient transition clinical pathway.
  • Facilitation of collaboration between pediatric and adult CF care teams.
  • Utilization of a tool to measure patient transfer readiness.

Main Results:

  • Each intervention (clinical pathway, adult clinic collaboration, readiness tool) proved valuable.
  • The integrated approach significantly enhanced the transition process.
  • The initiative evolved into a comprehensive transition protocol.

Conclusions:

  • The described quality improvement initiative provides a model for effective CF transition care.
  • The implemented interventions are now recognized as essential components of transition best practices.
  • Optimizing healthcare transitions is vital for managing the long-term needs of CF patients.

Keywords:
Adolescent transitionCystic fibrosis (CF)Quality improvement (QI) initiativeYouth health

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