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TBase - an Integrated Electronic Health Record and Research Database for Kidney Transplant Recipients

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Clinical research informatics and electronic health record data.

R L Richesson¹, M M Horvath, S A Rusincovitch

¹Rachel Richesson, PhD, MPH, Duke University School of Nursing, 2007 Pearson Bldg, 311 Trent Drive, Durham, NC, 27710, USA, Tel: +1 (919) 681-0825, E-mai: rachel.richesson@duke.edu.

Yearbook of Medical Informatics

|August 16, 2014

Summary

Electronic health record (EHR) data is crucial for Clinical Research Informatics (CRI). Addressing data quality, integration, and governance challenges is essential for leveraging EHR data in research and patient care.

Keywords:

Biomedical research data collection electronic health records research design

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Published on: February 19, 2021

Area of Science:

Biomedical Informatics
Clinical Research Informatics
Health Data Science

Background:

The increasing availability of electronic health record (EHR) data presents new opportunities and challenges for clinical research.
Clinical Research Informatics (CRI) integrates biomedical research and informatics, with EHR data becoming a central focus.

Purpose of the Study:

To discuss the impact of growing EHR data availability on the evolving field of CRI.
To identify key challenges and areas for emphasis in utilizing EHR data for research.

Main Methods:

This study is a survey and discussion of the current landscape of EHR data utilization in CRI.
It synthesizes challenges and proposes areas for continued development.

Main Results:

Significant challenges exist in ensuring the quality, completeness, and provenance of EHR-derived data for research.
Methods for data integration, phenotype definitions, data governance, and national data standards require further development.

Conclusions:

Leveraging EHR data is a priority in CRI, requiring an understanding of clinical data collection processes.
Multi-disciplinary collaboration and a focus on data quality are essential for advancing EHR data use in research and patient care.
CRI plays a vital role in the infrastructure of a learning healthcare system, facilitating practical applications and research agendas.