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Updated: Apr 25, 2026

Using Visual and Narrative Methods to Achieve Fair Process in Clinical Care

Using Visual and Narrative Methods to Achieve Fair Process in Clinical Care

Published on: February 16, 2011

Knowledge About Hospice: Exploring Misconceptions, Attitudes, and Preferences for Care.

John G Cagle¹, Daniel J Van Dussen², Krystal L Culler³

¹School of Social Work, University of Maryland, Baltimore, MD, USA jcagle@ssw.umaryland.edu.

The American Journal of Hospice & Palliative Care

|August 21, 2014

Summary

Public understanding of hospice care is moderate, with common misconceptions persisting despite high awareness. Increased hospice knowledge correlates with more positive attitudes and preferences, highlighting the need for educational interventions.

Keywords:

Medicare Hospice Benefit attitudes and beliefs end of life hospice knowledge myths and misconceptions about hospice preference for hospice

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Last Updated: Apr 25, 2026

Using Visual and Narrative Methods to Achieve Fair Process in Clinical Care

Using Visual and Narrative Methods to Achieve Fair Process in Clinical Care

Published on: February 16, 2011

Area of Science:

Gerontology
Palliative Care
Public Health

Background:

Limited evidence exists on public understanding of hospice care.
Misconceptions about hospice are prevalent but poorly documented.

Purpose of the Study:

To assess hospice knowledge in a diverse adult population across the US.
To explore the relationship between hospice knowledge, attitudes, beliefs, and demographics.

Main Methods:

A cross-sectional telephone survey of 123 US adults was conducted.
Participants completed measures of hospice knowledge, attitudes, experiences, and preferences.
The survey included over-sampling of minority populations.

Main Results:

Average hospice knowledge scores indicated moderate understanding.
A significant portion of respondents misunderstood hospice eligibility and concurrent care limitations.
Greater hospice knowledge was linked to more favorable attitudes and preferences.
Higher education, medical field employment, White ethnicity, and direct experience correlated with increased knowledge.

Conclusions:

Despite general favorability, significant myths and misperceptions about hospice persist.
These misconceptions may contribute to ethnic disparities in end-of-life care.
Educational interventions are necessary to improve public understanding of hospice.