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An emerging field of research: challenges in pediatric decision making
Ellen A Lipstein1,2,3, William B Brinkman2,3,4, Alexander G Fiks5,6
1Division of Adolescent and Transition Medicine, Cincinnati Children's Hospital Medical Center, Cincinnati, OH (EAL)
Insights
Pediatric decision science faces unique challenges in research, including child development, family dynamics, and preference measurement. Addressing these is key to improving medical decision-making for children.
Area of Science:
- Pediatric decision science
- Medical decision making research
Background:
- Growing interest in pediatric decision science driven by policies for children's involvement.
- Unique challenges in pediatric decision research include developmental changes, family context, and outcome measurement.
Purpose of the Study:
- Describe challenges in pediatric decision research.
- Provide insights for decision researchers on pediatric decision making.
- Establish a research blueprint for high-quality pediatric medical decisions.
Main Methods:
- Literature review and synthesis of existing research on pediatric decision science.
- Analysis of challenges specific to the pediatric population.
- Framework development for future research directions.
Main Results:
- Identified key challenges: dynamic child participation, family influence, and pediatric-specific outcome measurement.
- Highlighted the need for tailored approaches in pediatric decision research.
- Acknowledged progress but emphasized substantial remaining work.
Conclusions:
- Addressing pediatric decision-making challenges is crucial for advancing the field.
- Future research should focus on a blueprint to improve pediatric medical decision quality.
- Insights gained can foster decision-making science across all age groups.
Abstract:
There is growing interest in pediatric decision science, spurred by policies advocating for children's involvement in medical decision making. Challenges specific to pediatric decision research include the dynamic nature of child participation in decisions due to the growth and development of children, the family context of all pediatric decisions, and the measurement of preferences and outcomes that may inform decision making in the pediatric setting. The objectives of this article are to describe each of these challenges, to provide decision researchers with insight into pediatric decision making, and to establish a blueprint for future research that will contribute to high-quality pediatric medical decision making. Much work has been done to address gaps in pediatric decision science, but substantial work remains. Understanding and addressing the challenges that exist in pediatric decision making may foster medical decision-making science across the age spectrum.
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