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Spina bifida and sexuality.

Michael Ernst von Linstow1, Ida Biering-Sørensen, Annette Liebach

  • 1Clinic for Spinal Cord Injuries, Glostrup University Hospital, Havnevej 25, 3100 Hornbaek, Denmark. michael.von.linstow@regionh.dk.

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Summary

Many adults with spina bifida experience sexual dysfunction and dissatisfaction. Improved sexual education and counseling are crucial for enhancing their sexual health and overall quality of life.

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Area of Science:

  • Urology
  • Sexual Medicine
  • Rehabilitation Medicine

Background:

  • Spina bifida significantly impacts adult sexual function and relationships.
  • Understanding subjective sexual satisfaction is key to improving quality of life.

Purpose of the Study:

  • To evaluate sexual function in adults with spina bifida.
  • To assess their satisfaction with sexual life and relationships.

Main Methods:

  • A cohort study involving 53 adults with spina bifida (mean age 27.1).
  • Data collected via medical records, interviews, and validated questionnaires (FIMTM, SF-36).
  • Specific questions addressed sexual function, satisfaction, and education.

Main Results:

  • 51% reported sexual dysfunction, yet 45% were satisfied with their sexual lives.
  • Having a partner correlated with higher sexual satisfaction.
  • Faecal incontinence negatively impacted sexual function and satisfaction.

Conclusions:

  • A significant portion of adults with spina bifida face sexual challenges.
  • Targeted sexual education and counseling are needed.
  • Interventions can improve sexual health and quality of life for this population.