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A Familiarization Protocol Facilitates the Participation of Children with ASD in Electrophysiological Research
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[Playful intervention with chronically-ill children: promoting coping].

Flávia Moura de Moura, Aderson Luiz Costa Júnior, Meryeli Santos Araújo de Dantas

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    Activities in the "As a patient in the hospital" manual helped children with chronic diseases cope better by encouraging them to seek information and participate in their healthcare.

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    Area of Science:

    • Pediatric Psychology
    • Child Health Management
    • Qualitative Research Methods

    Context:

    • Chronic diseases significantly impact children's development.
    • Hospitalization presents unique challenges for pediatric patients.
    • Limited resources exist for supporting children's coping mechanisms during illness.

    Purpose:

    • To analyze the impact of the "Como H6spede no Hospital" manual activities on children with chronic diseases.
    • To understand how structured activities influence the coping process in pediatric patients.
    • To evaluate the effectiveness of patient education tools in improving health participation.

    Summary:

    • This qualitative action-research study involved six children (7-13 years) with chronic diseases in Paraíba, Brazil.
    • Data were collected via participant observation and manual-based activities in a pediatric clinic.
    • Thematic analysis revealed that manual activities promoted information seeking and engagement in healthcare.

    Impact:

    • Activities enhanced children's understanding of their condition and treatment.
    • Increased patient participation in healthcare processes was observed.
    • The study highlights the necessity of comprehensive care models for chronically ill children.