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CIPROS--a checklist with items for a patient registry software system
Doris Lindoerfer1, Ulrich Mansmann1
1Institut für medizinische Informationsverarbeitung, Biometrie und Epidemiologie, Ludwig-Maximilians-Universität München.
Patient registries are crucial for medical research, requiring complex software. A new checklist, CIPROS, aids in evaluating and reporting on these systems, potentially leading to future standards.
Area of Science:
- Medical Informatics
- Health Services Research
- Software Engineering
Background:
- Patient registries are vital tools in medical research.
- Implementing patient registries involves complex software systems to address diverse challenges.
- A critical evaluation of existing patient registry software architectures is necessary.
Purpose of the Study:
- To develop a comprehensive checklist for assessing patient registry software systems.
- To aid developers in evaluating system requirements.
- To standardize the reporting of patient registry software in publications.
Main Methods:
- Systematic literature review.
- Development of a checklist named CIPROS (Checklist for Patient Registry Software systems).
- CIPROS is organized into 10 sections and 67 items.
Main Results:
- The developed checklist, CIPROS, provides a structured approach to assess patient registry software.
- CIPROS facilitates requirement assessment for existing systems.
- It aids in consistent reporting of software system descriptions.
Conclusions:
- CIPROS serves as a valuable tool for developers and researchers.
- The checklist can improve the quality and comparability of patient registry software descriptions.
- CIPROS is a foundational step towards establishing standards for patient registry software systems.
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