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Updated: Apr 25, 2026

A Familiarization Protocol Facilitates the Participation of Children with ASD in Electrophysiological Research
Published on: July 31, 2017
Patient information, consents and privacy protection scheme for an information system dedicated to pervasive
Mohamed Ben Said1, Laurence Robel2, Claude Messiaen1
1Paris Descartes University, Faculty of Medicine, Department of Biostatistics and Medical Informatics, APHP - Necker Enfants Malades Hospital, Paris, France.
Abstract:
Patients explicit and unambiguous information, patients consents and privacy protection are reviewed in this article, in the frame of the deployment of the information system TEDIS dedicated to autism spectrum disorders. The role of the Delegate to the Protection of Data is essential at this stage. We developed a privacy protection scheme based on storing encrypted patients personal data on the server database and decrypting it on the Web browser. It tries to respond to the end-users request to manage nominative data in a human readable form and to meet with privacy protection framework.
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