Spousal support as experienced by people with multiple sclerosis: a qualitative study

Area of Science:

• Neurology
• Social Sciences
• Healthcare Research

Background:

• Multiple sclerosis (MS) significantly impacts daily life, often necessitating home support.
• Spouses are primary caregivers, providing approximately 80% of informal support to individuals with MS.
• Understanding spousal support experiences is vital for improving patient care and caregiver strategies.

Purpose of the Study:

• To explore the lived experiences of individuals with multiple sclerosis concerning the support received from their spouses.
• To identify key themes and elements of spousal support in the context of multiple sclerosis.
• To inform healthcare professionals and policymakers on enhancing spousal support for MS patients.

Main Methods:

• Qualitative content analysis of non-structured interviews.
• Purposeful sampling of 25 patients with multiple sclerosis from Iranian MS associations.
• Data collection conducted between September 2011 and August 2012.

Main Results:

• Four major themes of spousal support emerged: playing a supportive role, fostering a comfortable relationship, aiding in disease management, and assisting with functional abilities.
• Nine subthemes further detailed the multifaceted nature of spousal support.
• Identified support mechanisms highlight the importance of emotional, practical, and disease-management assistance.

Conclusions:

• The findings offer insights into improving the quality and effectiveness of spousal support for individuals with multiple sclerosis.
• Results can guide the development of educational programs for both MS patients and their supporting spouses.
• Enhanced understanding can inform the design of culturally sensitive care models for Iranian MS patients and their families.