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Related Concept Videos

Multiple Sclerosis l: Introduction01:19

Multiple Sclerosis l: Introduction

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Multiple sclerosis is a chronic autoimmune disease of the central nervous system (CNS) that affects the brain, spinal cord, and optic nerves. It is an inflammatory demyelinating disorder and a leading cause of neurological disability in young adults.EpidemiologyMS commonly begins between 20 and 40 years of age and is twice as common in women. Its exact cause remains unclear, but genetic susceptibility contributes, with higher risk in first-degree relatives and identical twins. A greater...
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Continuing Care01:25

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Continuing care describes the variety of health, personal, and social services provided over a prolonged period. The need for continuing care is increasing because people are living longer. Many people do not have families or others to care for them. Continuing care is mainly for patients who are disabled, functionally dependent, or suffering from a terminal disease. It is available within institutional settings or in homes. Examples include nursing centers or facilities, assisted living,...
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Comprehensive Autopsy Program for Individuals with Multiple Sclerosis
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A palliative care hotline for multiple sclerosis: A pilot feasibility study.

Andrea K Knies1, Heidrun Golla1, Julia Strupp1

  • 1Department of Palliative Medicine,University Hospital,Cologne,Germany.

Palliative & Supportive Care
|September 6, 2014
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Summary
This summary is machine-generated.

A pilot palliative care hotline for multiple sclerosis (MS) patients and caregivers demonstrated feasibility, successfully connecting eligible individuals to vital palliative care services. Further promotion is recommended to increase its reach and impact.

Keywords:
HotlinePalliative carePatient counselingSeverely affected by multiple sclerosis

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Area of Science:

  • Neurology
  • Palliative Care
  • Healthcare Services Research

Background:

  • Multiple Sclerosis (MS) is a chronic neurological disease impacting patients and caregivers.
  • Palliative care can significantly benefit individuals with severe MS.
  • Access to specialized palliative care support for MS patients remains a challenge.

Purpose of the Study:

  • To implement and pilot a palliative care counseling hotline for severely affected MS patients and their caregivers.
  • To assess the preliminary feasibility of this hotline service.

Main Methods:

  • The hotline was developed in collaboration with the German Multiple Sclerosis Society and literature review.
  • A pilot study was conducted in the Cologne and Bonn region, Germany.
  • Feasibility was assessed using quantitative (call volume) and qualitative (eligibility criteria) measures, with calls guided by a semistructured interview.

Main Results:

  • The pilot hotline received 18 calls in its first year, with 15 callers included in the analysis.
  • Ten of the 15 callers met eligibility criteria for palliative care, including medical needs, care conditions, caregiver burden, and end-of-life concerns.
  • All 10 eligible callers were successfully connected to palliative care services.

Conclusions:

  • The pilot palliative care hotline is a valuable resource for severely affected MS patients and their caregivers seeking information and access to palliative care.
  • The service demonstrated feasibility and will be expanded nationwide.
  • Enhancing awareness is crucial for broader utilization and support of new callers.