Familial diagnostic experiences in paediatric oncology
N T Evans1, C E Wakefield1, J K McLoone1
11] Behavioural Sciences Unit, Kids Cancer Centre, Sydney Children's Hospital High Street, Randwick, NSW 2031, Australia [2] Faculty of Medicine, School of Women's and Children's Health, UNSW Medicine, University of New South Wales, Kensington, NSW 2052, Australia.
Delays in diagnosing childhood cancer can cause significant psychological distress for families, even if they don't affect prognosis. This study highlights the emotional toll of the diagnostic journey for pediatric cancer patients and their relatives.
Area of Science:
- Pediatric Oncology
- Psychological Impact of Diagnosis
- Cancer Survivorship
Background:
- Diagnostic delays in pediatric oncology are understudied regarding their psychological effects.
- While not always impacting prognosis, the diagnostic experience carries psychological weight for families.
Purpose of the Study:
- To explore the psychological impacts of diagnostic experiences in childhood cancer.
- To understand the perspectives of childhood cancer survivors, parents, and siblings regarding diagnosis.
Main Methods:
- Qualitative interviews were conducted with 19 childhood cancer survivors, 78 parents, and 15 siblings.
- The study explored participants' experiences throughout the cancer diagnosis process.
Main Results:
- The median diagnostic time was 3 weeks, with delays occurring at appraisal and healthcare intervals.
- Families experiencing delays reported guilt, anger, and damaged family-clinician relationships.
- Some participants perceived diagnostic delays as negatively affecting treatment and prognosis.
Conclusions:
- The diagnostic experience, particularly delays, can have a considerable psychological effect on pediatric cancer patients and their families.
- Addressing the emotional and psychological aspects of the diagnostic journey is crucial in pediatric oncology care.
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