[Paediatric palliative care in Denmark should be strengthened]
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Updated: Apr 22, 2026

A Piglet Model of Neonatal Hypoxic-Ischemic Encephalopathy
Published on: May 16, 2015
Bodil Abild Jespersen1, Niels Clausen, Per Sjøgren
1Det Palliative Team, Onkologisk Afdeling D, Aarhus Universitetshospital, Nørrebrogade 44, 8000 Aarhus C.
Insights
Paediatric palliative care supports children with life-threatening illnesses and their families. Early planning ensures care aligns with family preferences, ideally at home.
Area of Science:
- Palliative Care
- Pediatrics
- Public Health
Background:
- Paediatric palliative care encompasses holistic support for children with life-threatening conditions and their families.
- It requires an interdisciplinary team approach, starting from diagnosis.
- In Denmark, 295 children under 16 died in 2013, with a significant proportion being infants.
Purpose of the Study:
- To highlight the importance of paediatric palliative care.
- To emphasize the benefits of early planning in palliative care.
- To advocate for home-based end-of-life care when preferred by families.
Main Methods:
- This study is a descriptive analysis of paediatric end-of-life care in Denmark.
- Data from 2013 mortality statistics for children under 16 were reviewed.
- The study discusses the principles and benefits of integrated home-care services.
Main Results:
- Most children and families prefer to die at home.
- Early planning facilitates better integration of home-care services.
- Planning ensures end-of-life care occurs in the preferred setting for the child and family.
Conclusions:
- Paediatric palliative care is crucial for children facing life-threatening illnesses.
- Early planning is essential for effective home-based end-of-life care.
- Supporting family preferences for place of death is a key component of quality palliative care.
Abstract:
Paediatric palliative care is the total care for the child's body, mind and spirit, and involves support to the family. It begins when a life-threatening disease is diagnosed and depends on an interdisciplinary team approach. In 2013, 295 children under the age of 16 years died in Denmark. Of these, 195 were less than one year old. Most children and their families may prefer death at home if possible. Early planning allows for better integration of home-care services and ensures that death occurs at the place that is best for the child and family.
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