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Guidelines for Elective Pediatric Fiberoptic Intubation
Published on: January 17, 2011
[Terminal ill children and dnd-of-life practices in the pediatric intensive care units]
Patrícia Miranda Lago1, Daniel Garros2, Jefferson P Piva3
1Hospital de Clinicas de Porto Alegre.
Insights
End-of-life care in pediatric intensive care units (PICUs) shows varying rates of life support limitation (LSL) globally. Family participation in decision-making for pediatric end-of-life care requires significant improvement, especially in Brazil.
Area of Science:
- Pediatric intensive care
- Bioethics
- End-of-life care
Context:
- Review of end-of-life care practices in pediatric intensive care units (PICUs).
- Comparative analysis of medical practices in Brazil and Northern Hemisphere countries.
- Literature search of PubMed, MedLine, and LILACS databases.
Purpose:
- To analyze and discuss end-of-life care medical practices for children in PICUs.
- To compare practices in Brazil with those in Northern Hemisphere countries.
- To identify effective measures for managing end-of-life care in the region.
Summary:
- Life support limitation (LSL) incidence is higher in North America and Northern Europe (60-80%) than in Southern Europe and Latin America (30-40%).
- In Brazil, LSL incidence has risen from 6% to 40% in the last decade, with 'do-not-resuscitate' orders being most common.
- Family participation in end-of-life care decision-making is limited and requires enhancement.
Impact:
- Highlights ethical, moral, and legal considerations of LSL in pediatric terminal illness.
- Underscores the need for urgent changes in end-of-life care practices, particularly regarding family involvement.
- Provides recommendations for improving end-of-life care management in pediatric intensive care settings.
Background And Objectives:
To analyze and discuss the medical practices related to the end-of-life care provided to children admitted to pediatric intensive care unit (PICU) in Brazil and in some countries located in the northern hemisphere.
Contents:
Selected articles on end-of-life care published during the last years searching the PubMed, MedLine and LILACS database, with special interest on studies of death conducted in pediatric intensive care units in Brazil, Latin America, Europe and North America, using the following key words: death, bioethics, PICU, cardiopulmonary resuscitation and life support limitation (LSL).
Conclusions:
In North America and North Europe, the incidence of LSL is greater (60%-80%) than in south Europe and Latin America (30%-40%). In Brazil the incidence of LSL depends on the region and in the last decade it is increasing from 6% to 40%; being the do-not-reanimated order the most frequent mode of LSL. The family participation in the decision making process is not stimulated and incipient. Based on the literature review and on their experience the authors present the measures that they consider most efficient and recommended for managing this situation in our region. Despite of LSL in children with terminal and irreversible disease be considered ethically, morally and legally; these measures are still adopted in a very few circumstances in our region. Urgent changes in this behavior are necessary, specially related to family participation in the decision-making process.
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