[Terminal ill children and dnd-of-life practices in the pediatric intensive care units]

Patrícia Miranda Lago1, Daniel Garros2, Jefferson P Piva3

  • 1Hospital de Clinicas de Porto Alegre.

Insights

End-of-life care in pediatric intensive care units (PICUs) shows varying rates of life support limitation (LSL) globally. Family participation in decision-making for pediatric end-of-life care requires significant improvement, especially in Brazil.

Area of Science:

  • Pediatric intensive care
  • Bioethics
  • End-of-life care

Context:

  • Review of end-of-life care practices in pediatric intensive care units (PICUs).
  • Comparative analysis of medical practices in Brazil and Northern Hemisphere countries.
  • Literature search of PubMed, MedLine, and LILACS databases.

Purpose:

  • To analyze and discuss end-of-life care medical practices for children in PICUs.
  • To compare practices in Brazil with those in Northern Hemisphere countries.
  • To identify effective measures for managing end-of-life care in the region.

Summary:

  • Life support limitation (LSL) incidence is higher in North America and Northern Europe (60-80%) than in Southern Europe and Latin America (30-40%).
  • In Brazil, LSL incidence has risen from 6% to 40% in the last decade, with 'do-not-resuscitate' orders being most common.
  • Family participation in end-of-life care decision-making is limited and requires enhancement.

Impact:

  • Highlights ethical, moral, and legal considerations of LSL in pediatric terminal illness.
  • Underscores the need for urgent changes in end-of-life care practices, particularly regarding family involvement.
  • Provides recommendations for improving end-of-life care management in pediatric intensive care settings.
Abstract

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