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Offering informed choice about breast screening.

Lindsay J L Forbes1, Amanda-Jane Ramirez2,

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Summary
This summary is machine-generated.

International concern over breast screening overdiagnosis led to new patient information in England. This approach integrates public and expert views to explain screening choices, benefits, harms, and uncertainties.

Keywords:
Breast neoplasmsChoice behaviourConsumer involvementHealth informationMass screening

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Area of Science:

  • Public Health
  • Health Communication
  • Cancer Screening

Background:

  • Growing international concern regarding overdiagnosis in breast cancer screening.
  • Increasing policy emphasis on informed choice for screening participants.
  • Need for improved communication strategies regarding screening benefits and harms.

Purpose of the Study:

  • To develop and implement novel information for breast screening participants in England.
  • To integrate diverse perspectives (public, engagement experts, risk communicators, screening experts) in information development.
  • To provide detailed information on overdiagnosis, benefits, harms, and uncertainties to facilitate informed choice.

Main Methods:

  • A novel approach integrating perspectives from screening-eligible individuals and various experts.
  • Development of new information materials for breast screening invitations.
  • Dissemination of new information to women invited for breast screening since September 2013.

Main Results:

  • New breast screening information explicitly outlines the choice and details overdiagnosis, benefit-harm balance, and scientific uncertainties.
  • The novel approach has been extended to bowel and cervical screening programmes in England.
  • The developed approach offers a potential model for cancer screening communication internationally.

Conclusions:

  • A new, integrated approach to developing cancer screening information enhances informed choice.
  • Detailed communication about overdiagnosis and uncertainties is crucial for effective screening programmes.
  • This model for communicating cancer screening information can be adopted globally.