[Paediatric palliative care in Denmark should be strengthened]

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Bodil Abild Jespersen1, Niels Clausen, Per Sjøgren

  • 1Det Palliative Team, Onkologisk Afdeling D, Aarhus Universitetshospital, Nørrebrogade 44, 8000 Aarhus C. bojesp@rm.dk.

Ugeskrift for Laeger
|October 30, 2014
PubMed

Insights

Paediatric palliative care supports children with life-threatening illnesses and their families. Early planning ensures care aligns with family preferences, ideally at home.

Area of Science:

  • Palliative Care
  • Pediatrics
  • Public Health

Background:

  • Paediatric palliative care encompasses holistic support for children with life-threatening diseases and their families.
  • It necessitates an interdisciplinary team approach from diagnosis onwards.
  • In Denmark, 295 children under 16 died in 2013, with a significant proportion being infants.

Purpose of the Study:

  • To highlight the importance of early planning in paediatric palliative care.
  • To emphasize the preference for home-based end-of-life care for children.
  • To underscore the role of integrated home-care services.

Main Methods:

  • This study is based on an analysis of mortality data for children in Denmark.
  • It reviews the principles and benefits of early planning in paediatric palliative care.
  • It considers the preferences of children and families regarding end-of-life care location.

Main Results:

  • Most children and families prefer to die at home if feasible.
  • Early planning facilitates better integration of home-care services.
  • Proactive planning ensures end-of-life care occurs in the preferred setting.

Conclusions:

  • Early and comprehensive planning is crucial for effective paediatric palliative care.
  • Integrating home-care services enhances the ability to meet family preferences for end-of-life care.
  • Prioritizing the child and family's preferred place of death is essential.

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