Retinoblastoma referral pattern in Kenya.

Area of Science:

• Ophthalmology
• Pediatric Oncology
• Public Health

Background:

• Retinoblastoma requires specialized care, posing challenges in large, dispersed populations like Kenya.
• Understanding referral patterns is crucial for developing effective national healthcare policies.

Purpose of the Study:

• To determine the referral patterns of retinoblastoma patients in Kenya.
• To inform the development of a national policy for retinoblastoma management.

Main Methods:

• Retrospective study of retinoblastoma patients from January 2006 to December 2007.
• Data collection on referral processes and time intervals from symptom onset to presentation and referral.
• Analysis of patient journeys from initial healthcare facility to final treatment.

Main Results:

• 206 retinoblastoma patients were analyzed, treated in Kenyan facilities.
• Significant delays observed: mean lag time of 6.8 months from symptom onset.
• 82% of patients required referral, with 35% lost to follow-up; mean referral lag time was 1.7 months.

Conclusions:

• Late presentation and high loss to follow-up are significant issues in retinoblastoma care in Kenya.
• A national strategy focusing on early detection, documentation, and patient follow-up is urgently needed.
• Improved referral and tracking systems are essential to reduce treatment delays and improve outcomes for retinoblastoma patients.