Linkage of 1986-2009 National Health Interview Survey with 1981-2010 Florida Cancer Data System
Eric A Miller1, Donna M Miller1, Dean H Judson1
1National Center for Health Statistics.
Summary
Linking national health survey data with state cancer registry data enables new cancer research. This pilot project demonstrates the value of linked data for understanding cancer causes and survivor quality of life.
Area of Science:
- Public Health
- Cancer Epidemiology
- Health Services Research
Background:
- National survey data and state cancer registries are crucial for cancer control.
- A pilot project linked the National Health Interview Survey (NHIS) with the Florida Cancer Data System (FCDS).
- This linkage aimed to assess feasibility and data value for cancer research.
Purpose of the Study:
- To evaluate the feasibility and utility of linking national survey data with a state cancer registry.
- To explore the potential of linked data for cancer prevention and control research.
- To examine factors associated with cancer diagnosis and quality of life among survivors.
Main Methods:
- A pilot project linked NHIS (1986-2009) and FCDS (1981-2010) data.
- The study involved a preliminary evaluation of the linked national and state cancer data.
- Analytic issues and complications arising from the record linkage were examined.
Main Results:
- The linked NHIS-FCDS dataset allows longitudinal follow-up of survey participants.
- Researchers can examine factors related to future cancer diagnoses.
- The data enables assessment of characteristics and quality of life for cancer survivors.
Conclusions:
- Residential mobility and data linkage duration present analytic challenges.
- Despite limitations, the linked dataset enables analyses not possible with individual datasets.
- This approach offers significant potential for cancer research and public health initiatives.
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