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[Young people with Down syndrome: independence and social functioning]
Helma M B van Gameren-Oosterom1, Minne Fekkes, Anne Marie Oudesluys-Murphy
1Willem-Alexander Kinderziekenhuis, Leids Universitair Medisch Centrum, Leiden.
Nederlands Tijdschrift Voor Geneeskunde
|November 20, 2014
Summary
Young people with Down syndrome demonstrate limited independence and social skills, requiring ongoing lifelong support. This study highlights challenges in daily functioning and increased behavioral issues compared to peers.
Area of Science:
- Developmental Psychology
- Clinical Psychology
- Genetics
Background:
- Down syndrome is a genetic condition impacting development.
- Understanding independence and social functioning is crucial for support.
Purpose of the Study:
- To assess independence and social functioning in young adults with Down syndrome.
- To compare their skills and behaviors with peers without Down syndrome.
Main Methods:
- Cross-sectional study involving 322 young people with Down syndrome (mean age 18.4).
- Utilized standardized questionnaires (social competence, behavior checklists) and background questions.
- Compared results with data from a non-Down syndrome peer group.
Main Results:
- Nearly 60% mastered basic independent living skills (hygiene, simple meal prep).
- Only 10% demonstrated advanced skills (cooking, shopping).
- 90% experienced social functioning difficulties (interaction, emotional regulation), with 50% showing clinically relevant behavioral problems.
Conclusions:
- Young individuals with Down syndrome exhibit restricted practical and social abilities.
- They experience more behavioral issues than their peers.
- Lifelong support is essential for their daily independence.
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