Supporting pediatric cancer survivors with neurocognitive late effects: a model of care

Lisa Northman1, Sarah Ross2, Marybeth Morris2

  • 1Dana-Farber Cancer Institute, Boston, MA, USA lisa_northman@dfci.harvard.edu.

Insights

Childhood cancer survivors often face educational challenges due to neurocognitive effects. A School Liaison Program (SLP) helps by providing support to students, parents, and schools, improving academic outcomes and communication.

Area of Science:

  • Pediatric Oncology
  • Neuroscience
  • Educational Psychology

Background:

  • Childhood cancer survivors, particularly those with central nervous system (CNS) involvement, frequently experience neurocognitive late effects.
  • These effects can manifest as difficulties in attention, executive functioning, processing speed, academic performance, and social integration, leading to social isolation.
  • Effective educational support is crucial for this vulnerable population to mitigate long-term challenges.

Purpose of the Study:

  • To provide an overview of a School Liaison Program (SLP) model designed to address the educational needs of pediatric patients treated for CNS cancers.
  • To evaluate the parent-perceived quality and effectiveness of the SLP in supporting children with cancer-related neurocognitive deficits.
  • To highlight the importance of tailored interventions for academic and social success in childhood cancer survivors.

Main Methods:

  • Descriptive overview of the School Liaison Program (SLP) model of care.
  • Inclusion of parent-reported feedback on program quality and effectiveness.
  • Analysis of perceived impacts on academic performance, home-school communication, and school understanding of student needs.

Main Results:

  • Parents generally attributed positive outcomes to SLP involvement.
  • Reported improvements included enhanced academic performance and better home-school communication.
  • Parents also noted increased understanding at the school level regarding their child's unique cognitive profiles and learning requirements.

Conclusions:

  • The School Liaison Program (SLP) model demonstrates effectiveness in supporting childhood cancer survivors with CNS involvement.
  • Parental perception indicates significant benefits in academic achievement and collaborative school-family-medical partnerships.
  • The SLP plays a vital role in addressing the complex educational and psychosocial needs of pediatric cancer patients, promoting better integration and success.

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