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Supporting pediatric cancer survivors with neurocognitive late effects: a model of care
Lisa Northman1, Sarah Ross2, Marybeth Morris2
1Dana-Farber Cancer Institute, Boston, MA, USA lisa_northman@dfci.harvard.edu.
Insights
Childhood cancer survivors often face educational challenges due to neurocognitive effects. A School Liaison Program (SLP) helps by providing support to students, parents, and schools, improving academic outcomes and communication.
Area of Science:
- Pediatric Oncology
- Neuroscience
- Educational Psychology
Background:
- Childhood cancer survivors, particularly those with central nervous system (CNS) involvement, frequently experience neurocognitive late effects.
- These effects can manifest as difficulties in attention, executive functioning, processing speed, academic performance, and social integration, leading to social isolation.
- Effective educational support is crucial for this vulnerable population to mitigate long-term challenges.
Purpose of the Study:
- To provide an overview of a School Liaison Program (SLP) model designed to address the educational needs of pediatric patients treated for CNS cancers.
- To evaluate the parent-perceived quality and effectiveness of the SLP in supporting children with cancer-related neurocognitive deficits.
- To highlight the importance of tailored interventions for academic and social success in childhood cancer survivors.
Main Methods:
- Descriptive overview of the School Liaison Program (SLP) model of care.
- Inclusion of parent-reported feedback on program quality and effectiveness.
- Analysis of perceived impacts on academic performance, home-school communication, and school understanding of student needs.
Main Results:
- Parents generally attributed positive outcomes to SLP involvement.
- Reported improvements included enhanced academic performance and better home-school communication.
- Parents also noted increased understanding at the school level regarding their child's unique cognitive profiles and learning requirements.
Conclusions:
- The School Liaison Program (SLP) model demonstrates effectiveness in supporting childhood cancer survivors with CNS involvement.
- Parental perception indicates significant benefits in academic achievement and collaborative school-family-medical partnerships.
- The SLP plays a vital role in addressing the complex educational and psychosocial needs of pediatric cancer patients, promoting better integration and success.
Abstract:
Educational difficulties are common for childhood survivors of central nervous system (CNS) cancers. Children who have been treated for brain tumors and those who have received treatments involving the CNS are at increased risk of developing neurocognitive late effects including difficulties with attention, executive functioning, speed of processing, and academic functioning. These children are also at risk for difficulties with social functioning and social isolation. This hospital's School Liaison Program (SLP) provides ongoing psychoeducation, advocacy, and consultation services for parents, schools, and medical staff to address the educational needs associated with the late effects of treatment for pediatric CNS-involved patients. This article provides an overview of the SLP model of care and discusses parent-perceived quality and program effectiveness. In general, parents attributed SLP involvement to improved academic performance, home-school communication, and school-level understanding of unique student cognitive profiles and learning needs.
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