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Involving Individuals with Developmental Language Disorder and Their Parents/Carers in Research Priority Setting
Published on: June 6, 2020
[Advance care planning for people with intellectual disability]
Annemieke M A Wagemans1, Frans C B van Wijmen
1Universiteit Maastricht, afd. Huisartsgeneeskunde en Expertisecentrum Palliatieve Zorg, Maastricht.
Abstract:
Difficult medical decisions regularly need to be made for people with intellectual disability. They are often unable to play a meaningful role in this and the decisions fall to the family or guardians. A useful aid to proactive medical management is advance care planning. This is a long-term care plan which is centred on the well-being of patients and their quality of life. Ideally it should be a matter for patients and those closest to them, the responsible medical practitioner and those tasked with the day-to-day care of patients. It is important to draw up this plan carefully and to regularly review it in the light of current circumstances.
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