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Participant views on involvement in a trial of social recovery cognitive-behavioural therapy
Caitlin Notley1, Rose Christopher1, Joanne Hodgekins1
1Caitlin Notley, BSc, PhD, UK Society for the Study of Addiction Research Fellow, Norwich Medical School, University of East Anglia, Norwich; Rose Christopher, BSc, Joanne Hodgekins, BSc, PhD, ClinPsyD, Department of Clinical Psychology, Norwich Medical School, University of East Anglia, Norwich; Rory Byrne, BSc, Greater Manchester West Mental Health NHS Foundation Trust, Psychosis Research Unit, Manchester; Paul French, BSc, PhD, ClinPsyD, Greater Manchester West Mental Health NHS Trust, Manchester and Department of Psychological Sciences, The University of Liverpool, Liverpool; David Fowler, MSc, CPsychol, Department of Psychology, University of Sussex, Brighton, UK.
Background:
The PRODIGY trial (Prevention of long term social disability amongst young people with emerging psychological difficulties, ISRCTN47998710) is a pilot trial of social recovery cognitive-behavioural therapy (SRCBT).
Aims:
The PRODIGY qualitative substudy aimed to (a) explore individual experiences of participating in the pilot randomised, controlled trial (recruitment, randomisation, assessment) and initial views of therapy, and (b) to explore perceived benefits of taking part in research v. ethical concerns and potential risks.
Method:
Qualitative investigation using semi-structured interviews with thematic analysis.
Results:
Analysis revealed participant experiences around the key themes of acceptability, disclosure, practicalities, altruism and engagement.
Conclusions:
Participants in both trial arms perceived themselves as gaining benefits from being involved in the study, above and beyond the intervention. This has implications for the design of future research and services for this client group, highlighting the importance of being flexible and an individualised approach as key engagement tools.
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