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Piloting a computer assisted telephone interview: the FUCHSIA Women's Study.

Helen B Chin1, Candice Y Johnson2, Konny H Kim3

  • 1Department of Epidemiology, Rollins School of Public Health, Emory University, 1518 Clifton Road NE, CNR 3rd Floor, Atlanta, GA, 30322, USA. hbchin@emory.edu.

BMC Women'S Health
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Summary

The FUCHSIA Women's Study developed a computer-assisted telephone interview (CATI) to assess fertility concerns in cancer survivors. Pilot testing refined the interview for improved data collection on cancer treatment's impact on female fertility.

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Area of Science:

  • Reproductive Health
  • Oncology
  • Health Services Research

Background:

  • Fertility loss is a significant concern for reproductive-age women diagnosed with cancer.
  • The Furthering Understanding of Cancer, Health, and Survivorship In Adult (FUCHSIA) Women's Study aims to understand cancer treatment's effect on fertility in survivors.
  • This paper details the development and pilot testing of the FUCHSIA computer-assisted telephone interview (CATI).

Purpose of the Study:

  • To develop and pilot test a CATI for the FUCHSIA Women's Study.
  • To evaluate the CATI's question sequencing, clarity, and participant comfort.
  • To refine the interview instrument for accurate data collection on female fertility post-cancer treatment.

Main Methods:

  • The CATI underwent iterative development and two pilot testing phases.
  • Participants were recruited from cancer and infertility support groups and study contacts.
  • Pilot testing focused on instrument usability, including question flow and participant experience.

Main Results:

  • Fifty-two women participated in the first pilot, with a mean age of 31.5 years; 17.3% had cancer and 38.5% experienced infertility.
  • Twenty-four women participated in the second pilot, showing similar demographic representation.
  • Pilot data informed necessary improvements to the CATI before the full study implementation.

Conclusions:

  • The refined CATI has the potential to significantly improve understanding of how cancer treatments affect female fertility.
  • Pilot testing provided crucial feedback for optimizing the CATI's design and function.
  • The study's recruitment strategy ensured diverse participant representation, enhancing the interview's generalizability and usability for future research.