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Inequities in health care needs for children with medical complexity
Dennis Z Kuo1, Anthony Goudie2, Eyal Cohen3
1Dennis Z. Kuo (dzkuo@uams.edu) is an associate professor of pediatrics at the University of Arkansas for Medical Sciences, in Little Rock.
Insights
Children with medical complexity face significant health care access inequities. Medical complexity itself, rather than socioeconomic factors, is a primary driver of unmet health needs for these children.
Area of Science:
- Pediatric Health Services Research
- Health Equity Studies
- Child Health Outcomes
Background:
- Children with special health care needs (CSHCN) are vulnerable to health inequities.
- Children with medical complexity (CMC) represent a subgroup of CSHCN requiring extensive medical services.
- Existing research suggests disparities in health and healthcare access for CSHCN.
Purpose of the Study:
- To compare healthcare inequities between children with medical complexity (CMC) and CSHCN without medical complexity.
- To identify factors contributing to unmet healthcare needs among CMC.
- To analyze the impact of race/ethnicity, language, insurance, and poverty on healthcare access for CMC.
Main Methods:
- Secondary data analysis of the 2005-06 and 2009-10 National Survey of Children with Special Health Care Needs (CSHCN).
- Examined prevalence, service use, and needs reported by families.
- Focused on inequities related to race/ethnicity, primary language, insurance type, and poverty status.
Main Results:
- Children with medical complexity were twice as likely to have unmet healthcare needs compared to CSHCN without medical complexity.
- Among CMC, unmet needs were not significantly associated with primary household language, income, or Medicaid insurance.
- Medical complexity emerged as a significant determinant of unmet healthcare needs.
Conclusions:
- Medical complexity is a primary driver of unmet healthcare needs in children.
- Healthcare access disparities for CMC are not solely explained by socioeconomic or demographic factors.
- Targeted interventions addressing the unique needs of CMC are crucial for improving health equity.
Abstract:
Children with special health care needs are believed to be susceptible to inequities in health and health care access. Within the group with special needs, there is a smaller group of children with medical complexity: children who require medical services beyond what is typically required by children with special health care needs. We describe health care inequities for the children with medical complexity compared to children with special health care needs but without medical complexity, based on a secondary analysis of data from the 2005-06 and 2009-10 National Survey of Children with Special Health Care Needs. The survey examines the prevalence, health care service use, and needs of children and youth with special care needs, as reported by their families. The inequities we examined were those based on race/ethnicity, primary language in the household, insurance type, and poverty status. We found that children with medical complexity were twice as likely to have at least one unmet need, compared to children without medical complexity. Among the children with medical complexity, unmet need was not associated with primary language, income level, or having Medicaid. We conclude that medical complexity itself can be a primary determinant of unmet needs.
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