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Coping with congenital hand differences.

Lauren E Franzblau¹, Kevin C Chung, Noelle Carlozzi

¹Ann Arbor, Mich.; and Hempstead, N.Y. From the Section of Plastic Surgery and the Department of Physical Medicine and Rehabilitation, University of Michigan Medical School; and the Department of Orthopaedic Surgery, Hofstra North Shore-Long Island Jewish School of Medicine.

Plastic and Reconstructive Surgery

|December 16, 2014

Summary

This summary is machine-generated.

Children with congenital hand differences experience psychosocial stress, but often use positive coping strategies like self-acceptance and humor. Understanding these coping mechanisms is key for supporting their well-being.

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Area of Science:

Pediatric Psychology
Hand Surgery
Developmental Pediatrics

Background:

Limited understanding of psychosocial stress in children with congenital hand differences.
Focus on functional outcomes often overshadows emotional well-being.
Qualitative exploration of stress and coping is needed.

Purpose of the Study:

To explore stress and coping mechanisms in children with congenital hand differences.
To identify sources of stress related to hand function and appearance.
To understand children's emotional responses and coping strategies.

Main Methods:

Semistructured interviews with 40 patients and parents.
Thematic analysis of transcribed interviews.
Development of a consensus taxonomy for content classification.

Main Results:

58% of children and 40% of parents reported stress; key sources include functional deficits, appearance, and social interactions.
Parents were unaware of stress in 43% of affected children.
Identified coping strategies include humor, self-acceptance, avoidance, seeking support, concealment, education, support programs, and religion.

Conclusions:

Children with congenital hand differences experience significant stress but utilize effective coping mechanisms.
Positive coping strategies can enhance self-esteem.
Clinicians should educate families on stress sources and bolster coping strategies and support systems.