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Using Visual and Narrative Methods to Achieve Fair Process in Clinical Care
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Autonomy and confidentiality: patients' perspectives.

Ihab Babiker Abdalrahman1, Ahmed Mohammed Abdulrahman Osman2, Baraah Mohammed Adham Ali3

  • 1Assistant Professor, Department of Internal Medicine, Faculty of Medicine, University of Khartoum, Khartoum, Sudan.

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Patients desire autonomy and confidentiality regarding their health. This study reveals that Sudanese patients want to know their diagnosis, choose their doctor, and be involved in treatment decisions.

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Area of Science:

  • Medical Ethics
  • Patient Autonomy
  • Health Confidentiality

Background:

  • Patient perspectives on autonomy and confidentiality in healthcare are not well-understood.
  • Assessing patient rights awareness is crucial for ethical medical practice.

Purpose of the Study:

  • To evaluate patient opinions on their rights concerning illness-related autonomy and confidentiality.
  • To understand patient expectations in healthcare decision-making.

Main Methods:

  • Multi-centered, cross-sectional study conducted in Khartoum, Sudan outpatient clinics.
  • Survey administered to 295 respondents.
  • Data analyzed using Microsoft Excel and SPSS.

Main Results:

  • 85% of patients desired knowledge of their medical conditions.
  • 17% wished to select their treatment, and 29% believed in their right to refuse treatment.
  • Significant variation in information concealment from relatives based on diagnosis (e.g., HIV 90%, malignancy 16.7%).

Conclusions:

  • Patients want to select their treating physician and be informed about their health status.
  • Patients expect consultation before procedures and wish to retain control over their rights while deferring technical aspects to doctors.