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The Participant-Reported Implementation Update and Score PRIUS: A Novel Method for Capturing Implementation-Related Data Over Time
Published on: February 19, 2021
A national data infrastructure for patient-centered outcomes research
Christine Dymek1, Janelle Gingold, Avinash Shanbhag
1Office of the Assistant Secretary for Planning & Evaluation, US Department of Health & Human Services, 200 Independence Ave SW, Washington, DC 20201, USA.
Abstract:
Concerted efforts are underway to improve healthcare decision-making through patient-centered outcomes research. These efforts are supported by the Patient-Centered Outcomes Research Trust Fund, which was established within the Patient Protection and Affordable Care Act. This article focuses on describing national data infrastructure efforts that support patient-centered outcomes research. A national data infrastructure has the potential to decrease research costs and improve research throughput. We describe early and current efforts that demonstrated this potential, how the national effort is utilizing the lessons learned from these predecessor efforts and remaining challenges.
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