Related Experiment Video
Updated: Apr 18, 2026
06:16
Involving Individuals with Developmental Language Disorder and Their Parents/Carers in Research Priority Setting
Published on: June 6, 2020
4.8K
Exploring patient and public involvement in stroke research: a qualitative study.
Madeleine Harrison1, Rebecca Palmer1,2
1a ScHARR, University of Sheffield , Sheffield , UK and.
Disability and Rehabilitation
|January 20, 2015
Summary
Patient and public involvement (PPI) in stroke research benefits both stroke survivors and carers, enhancing the research process. Addressing barriers like concentration and providing facilitators such as reimbursement are key for successful collaboration.
Area of Science:
- Neurology
- Rehabilitation Medicine
- Health Services Research
Background:
- Patient and public involvement (PPI) is increasingly recognized as crucial in shaping research.
- Stroke rehabilitation research can significantly benefit from the unique perspectives of those with lived experience.
Purpose of the Study:
- To explore the experiences of stroke survivors and carers participating in patient and public involvement (PPI) activities.
- To identify the perceived benefits, barriers, and facilitators of PPI in stroke research.
Main Methods:
- Semi-structured interviews were conducted with 11 stroke survivors and carers.
- Thematic analysis was employed to analyze the interview data.
Main Results:
- Four themes emerged: impact of PPI, credibility and expertise, level of involvement, and barriers/facilitators.
- Participants highlighted benefits such as directing research agendas and grounding researchers.
- Barriers included logistical issues and cognitive challenges, while facilitators involved reimbursement and professional support.
Conclusions:
- PPI in stroke research offers advantages for both participants and the research process.
- Understanding and addressing barriers and facilitators is essential for effective PPI engagement in stroke rehabilitation research.
