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Comprehensive Autopsy Program for Individuals with Multiple Sclerosis
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Dementia in multiple sclerosis: why is it rarely discussed?

Holly James Westervelt1

  • 1Department of Neurology, Vanderbilt University School of Medicine, Nashville TN 37240, USA holly.westervelt@vanderbilt.edu.

Archives of Clinical Neuropsychology : the Official Journal of the National Academy of Neuropsychologists
|January 26, 2015
PubMed
Summary

Cognitive deficits are common in multiple sclerosis (MS), but severe dementia is often overlooked. This study argues for defining and discussing dementia in MS to improve patient communication and care.

Keywords:
DementiaMultiple sclerosisProfessional issues

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Area of Science:

  • Neurology
  • Neuropsychology
  • Cognitive Science

Background:

  • Cognitive deficits are a known issue in multiple sclerosis (MS).
  • The frequency and severity of cognitive impairment, particularly dementia, are underrepresented in scientific literature.
  • There's a lack of open discussion regarding dementia within the MS community.

Purpose of the Study:

  • To highlight the underrecognized prevalence of dementia in multiple sclerosis.
  • To explore reasons behind the literature's omission of severe cognitive decline in MS.
  • To advocate for defining dementia in MS and developing patient-friendly terminology.

Main Methods:

  • Literature review of MS cognitive impairment studies.
  • Analysis of reporting trends regarding severe cognitive deficits.
  • Discussion of potential societal and clinical factors influencing terminology.

Main Results:

  • Severe cognitive deficits, including dementia, occur in multiple sclerosis with significant frequency.
  • Existing literature frequently minimizes or omits discussion of dementia in MS.
  • Reasons for this omission are multifaceted, including potential patient stigma and diagnostic challenges.

Conclusions:

  • Dementia is a significant, yet under-discussed, aspect of multiple sclerosis.
  • There is a need to formally define and acknowledge dementia in MS.
  • Developing sensitive terminology is crucial for patient-centered care and communication.