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Published on: May 3, 2016
Acceptability by parents and children of deception in pediatric research
Melanie Noel1, Katelynn E Boerner, Kathryn A Birnie
1*Centre for Child Health, Behavior and Development, Seattle Children's Research Institute, Seattle, WA; †Department of Psychology and Neuroscience, Dalhousie University, Halifax, NS, Canada; ‡Centre for Pediatric Pain Research, IWK Health Center, Halifax, NS, Canada; §Department of Pediatrics, Dalhousie University, Halifax, NS, Canada; ‖Department of Applied Psychology and Human Development, University of Toronto, Toronto, ON, Canada.
Objective:
Deception has been used to investigate the role of developmental and behavioral factors in child health; however, its acceptability for use in pediatric research has received little empirical attention. This study examined the acceptability of deception in a pediatric pain research study as assessed through participating children's and parents' long-term perceptions of its use.
Method:
Ninety-four children (52 boys; mean age = 12.77 yr) and their parents (86 mothers, 8 fathers) completed a structured interview that assessed perceptions of various aspects of deception in a pediatric pain study, 2.5 years after participating.
Results:
A minority of parents (25.5%) and children (13.8%) spontaneously recalled that deception was used. Overall, parents and children reported positive experiences with research participation, felt comfortable with the debriefing process, and deemed the research to be of societal importance. Opinions about researchers and psychologists were not negatively impacted, and most reported willingness to participate in research involving deception again.
Conclusion:
When thoughtfully planned and disclosed, deception in pediatric research seems to be acceptable to parents and children. Future research should further examine the acceptability of deception and alternatives (e.g., authorized deception) among pediatric samples.
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