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How to develop a phenomenological model of disability.

Kristian Moltke Martiny1,2

  • 1Department of Media, Cognition and Communication, Center for Subjectivity Research, University of Copenhagen, Njalsgade 140-142, 2300, Copenhagen S, Denmark. kmartiny@hum.ku.dk.

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Summary

This study introduces a new phenomenological model for understanding disability, focusing on the lived experience of individuals with congenital conditions like cerebral palsy (CP). It highlights disability as a gradual difference, not a disruption, shaped by internal and external factors.

Keywords:
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Area of Science:

  • Philosophy of Medicine
  • Disability Studies
  • Phenomenology

Background:

  • The meaning of disability is debated in health and social sciences.
  • Phenomenology offers an overlooked approach to understanding disability.
  • Existing phenomenological models struggle with congenital disabilities.

Purpose of the Study:

  • To develop a novel phenomenological model of disability.
  • To propose a new methodological and conceptual framework.
  • To address limitations in current phenomenological approaches to disability.

Main Methods:

  • Critique of existing phenomenological models of illness.
  • Analysis of the lived experience of congenital disabilities, using cerebral palsy (CP) as a case study.
  • Description of disability as a gradual difference from, rather than a disruption of, able-bodied experience.

Main Results:

  • Congenital disabilities like CP pose challenges for illness-focused phenomenological models.
  • Disability experience is a complex, dynamic interplay of intrinsic and extrinsic factors.
  • The experience of disability has distinct pre-reflective, attuned, and reflective aspects, varying in degree.

Conclusions:

  • A new phenomenological framework is proposed for understanding disability.
  • The experience of disability is presented as a continuum, influenced by multiple factors.
  • This research enriches the discourse on disability by detailing personal experiences.