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[When should palliative care for children with life-threatening illnesses begin?]

Eva Bergsträsser1

  • 1Pädiatrische Palliative Care, Universitäts-Kinderspital Zürich - Eleonorenstiftung.

Praxis
|March 12, 2015
PubMed

Insights

Paediatric palliative care in Switzerland is developing, with limited knowledge compared to adult care. A new Paediatric Palliative Screening Scale (PaPaS Scale) helps health professionals identify when to initiate care for children.

Area of Science:

  • Palliative Care
  • Paediatric Medicine
  • Healthcare Management

Background:

  • Paediatric palliative care in Switzerland is underdeveloped, with a knowledge gap compared to adult palliative care.
  • Early identification and intervention are crucial for improving quality of life in children with serious illnesses.
  • Existing screening tools may not adequately address the unique needs of children and their families.

Observation:

  • A novel screening instrument, the Paediatric Palliative Screening Scale (PaPaS Scale), has been developed for healthcare professionals.
  • The PaPaS Scale assesses five key domains: disease trajectory, treatment burden, symptom burden, patient/parent preferences, and life expectancy.
  • This tool aims to standardize and facilitate the timely initiation of paediatric palliative care.

Findings:

  • The PaPaS Scale provides a structured approach to evaluating a child's condition and needs for palliative care.
  • It integrates disease, treatment, symptom, psychosocial, and prognostic factors.
  • The scale is designed to aid clinical decision-making regarding the introduction of palliative care services.

Implications:

  • Implementing the PaPaS Scale can improve the quality of life for children with life-limiting conditions.
  • It supports healthcare professionals in making informed decisions about when to start palliative care.
  • This initiative can advance the field of paediatric palliative care in Switzerland and beyond.

Keywords:
IndikationInstrumentPalliative Care Kinderchildrenindicationinstrumentoutil décisionnelpalliative caresoins palliatifs chez l'enfant

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