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Transition of care in pediatric surgical patients with complex gastrointestinal disease
Eleanor D Muise1, Robert A Cowles1
1Department of Surgery, Yale University School of Medicine, New Haven, Connecticut.
Insights
Continuity of care for pediatric surgical patients with gastrointestinal disorders into adulthood presents challenges. This article discusses key aspects for transitioning care from pediatric to adult practitioners, focusing on specific conditions.
Area of Science:
- Pediatric Surgery
- Gastroenterology
- Transition of Care
Background:
- Pediatric surgeons manage diverse congenital and acquired conditions in children.
- Many gastrointestinal conditions have excellent long-term prognoses, necessitating lifelong care.
- A lack of guidance exists for the long-term management of these patients into adulthood.
Purpose of the Study:
- To discuss essential aspects of transitioning care for pediatric surgical patients with complex gastrointestinal disorders.
- To provide guidance for adult practitioners assuming care from pediatric specialists.
- To highlight challenges and strategies for lifelong management.
Main Methods:
- Review of current literature and clinical practice guidelines.
- Discussion of specific case examples including short bowel syndrome, Hirschsprung Disease, and anorectal malformations.
- Identification of key elements for successful care transition.
Main Results:
- Transitioning care requires a multidisciplinary approach.
- Patient and family education is crucial for long-term self-management.
- Standardized protocols for adult care are needed.
Conclusions:
- Successful transition of care ensures optimal long-term outcomes for pediatric surgical patients.
- Addressing the unique needs of adults with childhood-onset gastrointestinal conditions is vital.
- Further research and development of transition protocols are warranted.
Abstract:
Pediatric surgeons provide care for infants and children with a wide variety of conditions throughout the body. Many of these conditions are congenital or occur very early in life, and for this reason, providing continuity of care for these patients into adulthood is an emerging challenge. In the gastrointestinal tract, congenital and acquired conditions are now associated with excellent long-term prognosis; however, little guidance on long-term care exists. The aim of this article is to discuss aspects that are important to transitioning care of pediatric surgical patients with complex gastrointestinal disorders from pediatric to adult practitioners. Transitional care of patients with short bowel syndrome, Hirschsprung Disease, and anorectal malformations will be the focus of this discussion, but the concepts introduced here may translate to other diagnoses as well.
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