Transition of care in congenital heart disease from pediatrics to adulthood

Sameh M Said1, David J Driscoll2, Joseph A Dearani1

  • 1Division of Cardiovascular Surgery, Mayo Clinic, 200 First Street SW, Rochester, MN 55905.

Insights

Transitioning pediatric patients with congenital heart defects to adult care requires careful planning. Education and team communication are key to overcoming challenges and ensuring continuity of care for improved quality of life.

Area of Science:

  • Pediatric Cardiology
  • Adult Congenital Heart Disease
  • Healthcare Transition

Background:

  • Advances in medical care have increased survival rates for children with congenital heart defects (CHDs).
  • Survivors require lifelong specialized care, necessitating a transition from pediatric to adult healthcare systems.
  • Gaps in care during this transition can lead to adverse outcomes for patients with CHDs.

Purpose of the Study:

  • To review the challenges associated with the transition of care for patients with CHDs.
  • To provide recommendations for optimizing this transition process.
  • To ensure continuity of care and improve quality of life for adult CHD patients.

Main Methods:

  • Literature review of studies on healthcare transition for CHDs.
  • Analysis of challenges faced by patients, families, and providers.
  • Synthesis of best practices for a smooth transition.

Main Results:

  • Key challenges include loss of continuity of care, financial burdens, and psychological stress.
  • Effective transition requires patient and family education about specific heart defects.
  • A multidisciplinary team approach with clear communication is crucial.

Conclusions:

  • A structured and supportive transition process is vital for adult CHD survivors.
  • Education and collaborative care models can mitigate transition-related challenges.
  • Optimizing transition improves long-term health outcomes and patient well-being.

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