Related Experiment Video
Updated: Apr 16, 2026

Implantation of Total Artificial Heart in Congenital Heart Disease
Published on: July 18, 2014
Transition of care in congenital heart disease from pediatrics to adulthood
Sameh M Said1, David J Driscoll2, Joseph A Dearani1
1Division of Cardiovascular Surgery, Mayo Clinic, 200 First Street SW, Rochester, MN 55905.
Insights
Transitioning pediatric patients with congenital heart defects to adult care requires careful planning. Education and team communication are key to overcoming challenges and ensuring continuity of care for improved quality of life.
Area of Science:
- Pediatric Cardiology
- Adult Congenital Heart Disease
- Healthcare Transition
Background:
- Advances in medical care have increased survival rates for children with congenital heart defects (CHDs).
- Survivors require lifelong specialized care, necessitating a transition from pediatric to adult healthcare systems.
- Gaps in care during this transition can lead to adverse outcomes for patients with CHDs.
Purpose of the Study:
- To review the challenges associated with the transition of care for patients with CHDs.
- To provide recommendations for optimizing this transition process.
- To ensure continuity of care and improve quality of life for adult CHD patients.
Main Methods:
- Literature review of studies on healthcare transition for CHDs.
- Analysis of challenges faced by patients, families, and providers.
- Synthesis of best practices for a smooth transition.
Main Results:
- Key challenges include loss of continuity of care, financial burdens, and psychological stress.
- Effective transition requires patient and family education about specific heart defects.
- A multidisciplinary team approach with clear communication is crucial.
Conclusions:
- A structured and supportive transition process is vital for adult CHD survivors.
- Education and collaborative care models can mitigate transition-related challenges.
- Optimizing transition improves long-term health outcomes and patient well-being.
Abstract:
Improvement in surgical techniques, anesthesia, and perioperative care has resulted in the majority of children born with congenital heart defects surviving into adulthood with a normal or near-normal quality of life. A careful transition from pediatric to adult care providers is important to avoid issues related to loss of continuity of care and any undue financial or psychological burdens to the patients and their families. The patients, their families, and the health care providers are faced with many challenges during this transition process that can be optimized and overcome by education about the heart defects and a team approach with clear lines of communication. This review addresses the challenges related to the transition of care from pediatrics to adults and provides the necessary recommendations to ensure a smooth transition process.
Related Concept Videos
Cardiomyopathy V: Interprofessional Care
Cardiomyopathy III: Hypertrophic Cardiomyopathy
Development of the Heart
As the embryo undergoes lateral folding, these paired tubes approach each other, merging into a single primitive heart...
Cardiomyopathy II: Dilated Cardiomyopathy
Cardiopulmonary Resuscitation I: Adult
Cardiomyopathy VII: Pre and Post Operative Nursing Management

