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Hospital to home paediatric enteral nutrition--parents need support

C Shortall, M Aherne, S Boland

    Irish Medical Journal
    |March 26, 2015
    PubMed

    Insights

    Parents of children on home enteral nutrition (HEN) need improved support and education. A dedicated HEN team could enhance care coordination, reduce hospital readmissions, and improve outcomes for these children.

    Area of Science:

    • Pediatric Nutrition
    • Healthcare Support Services
    • Patient Education

    Background:

    • Home enteral nutrition (HEN) is crucial for children with specific medical needs.
    • Current support systems for HEN families often fall short of parental expectations.
    • Effective education and coordinated care are vital for successful home management.

    Purpose of the Study:

    • To assess the current provision of education and support for parents of children on HEN.
    • To identify challenges faced by parents and carers managing HEN at home.
    • To evaluate the adequacy of existing dietetic support services.

    Main Methods:

    • Survey distributed to parents and carers of children on HEN.
    • Analysis of 39 responses regarding satisfaction with HEN services.
    • Qualitative assessment of perceived needs and challenges.

    Main Results:

    • A significant majority of parents (83%) indicated a need for HEN service improvement.
    • Most parents (74%) desired more structured follow-up care.
    • Many parents (56%) preferred a single point of contact for HEN coordination and education.
    • A notable percentage (18%) highlighted the need for enhanced healthcare professional (HCP) education.

    Conclusions:

    • Specialized pediatric HEN dietetic services within dedicated teams are recommended.
    • These teams should provide comprehensive training, education, and post-discharge liaison.
    • Implementing such services could improve care transitions, reduce hospital readmissions, and decrease healthcare costs.

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