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Psychosocial screening at paediatric BEEC clinics: a pilot evaluation study.
Ruth A Hurrell1, Catherine Fullwood2, Joni Keys1
1Paediatric Psychosocial Service, Royal Manchester Children's Hospital, Manchester, UK; Bladder Exstrophy Service, Department of Urology, Royal Manchester Children's Hospital, Manchester, UK.
Journal of Pediatric Urology
|March 28, 2015
Summary
This study screened paediatric patients with Bladder Exstrophy and Epispadias Complex (BEEC) for psychosocial difficulties. While average scores were normal, individual variations suggest potential needs for further assessment and tailored support.
Area of Science:
- Pediatric Psychology
- Urology
- Mental Health Screening
Background:
- Bladder Exstrophy and Epispadias Complex (BEEC) is linked to increased risks in mental health, quality of life, and psychosocial functioning.
- Screening for psychosocial difficulties is crucial for comprehensive BEEC patient care.
Purpose of the Study:
- To screen pediatric patients diagnosed with BEEC for general psychosocial difficulties.
- To evaluate these difficulties within a multidisciplinary outpatient clinic setting.
Main Methods:
- A cross-sectional study involving 80 pediatric BEEC patients and their parents/carers.
- Utilized standardized questionnaires: PedsQL, SDQ, PI-ED, and HADS.
- Data collected between April 2012 and July 2013.
Main Results:
- Mean scores on all questionnaires fell within average/normal ranges, indicating generally positive psychosocial well-being.
- Significant variations were observed, with older patients, males, and those with classic bladder exstrophy showing higher risk in certain areas.
- Self-reported health-related quality of life (HRQoL) scores were better than those reported for other pediatric chronic health conditions.
Conclusions:
- The BEEC population studied showed a generally optimistic psychosocial profile, particularly in HRQoL, aligning with recent findings.
- High individual score variations and study limitations (small sample size, lack of control group) necessitate cautious interpretation.
- Future screening should consider BEEC-specific variables and medical aspects, alongside tailored psychological consultations for in-depth assessment.
