The European Registry for Patients with Mechanical Circulatory Support (EUROMACS): first annual report

Theo M M H de By1, Paul Mohacsi2, Jan Gummert3

  • 1Euromacs e.V. c/o Deutsches Herzzentrum Berlin, Berlin, Germany theodeby@euromacs.org paul.mohacsi@insel.ch.

Insights

The European Registry for Patients with Mechanical Circulatory Support (EUROMACS) collects data to improve care for heart failure patients receiving ventricular assist devices or total artificial hearts. It fosters research and collaboration, offering anonymized data for scientific studies.

Area of Science:

  • Cardiology
  • Medical Engineering
  • Public Health

Background:

  • Established in 2009, EUROMACS is a key European registry for mechanical circulatory support (MCS).
  • It was founded by international experts to advance care for end-stage heart failure patients.
  • The registry focuses on ventricular assist devices (VADs) and total artificial hearts (TAHs).

Purpose of the Study:

  • To promote scientific research and improve patient care in mechanical circulatory support.
  • To establish and maintain a comprehensive registry of device implantation and long-term follow-up data.
  • To facilitate anonymized data access for research groups and foster collaboration.

Main Methods:

  • Utilizes a software tool provided by Dendrite Clinical Systems Ltd for daily data input and analysis.
  • Collects device implantation data and long-term patient follow-up information.
  • Anonymizes patient and center data to enable secure access for research.

Main Results:

  • EUROMACS has experienced rapid growth in institutional and individual membership.
  • The registry facilitates data availability and significance, enhancing scientific contributions.
  • An alliance with the European Association for Cardiothoracic Surgeons began in 2012 to optimize data use.

Conclusions:

  • EUROMACS is the leading European registry for mechanical circulatory support.
  • The registry plays a vital role in advancing scientific understanding and improving patient outcomes.
  • Continued collaboration and data utilization are key to its ongoing success.

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