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Updated: Apr 15, 2026

The HoneyComb Paradigm for Research on Collective Human Behavior
Published on: January 19, 2019
Research led by participants: a new social contract for a new kind of research
Effy Vayena1, Roger Brownsword2, Sarah Jane Edwards3
1Institute of Biomedical Ethics, University of Zurich, Zurich, Switzerland.
Abstract:
In recent years, there have been prominent calls for a new social contract that accords a more central role to citizens in health research. Typically, this has been understood as citizens and patients having a greater voice and role within the standard research enterprise. Beyond this, however, it is important that the renegotiated contract specifically addresses the oversight of a new, path-breaking approach to health research: participant-led research. In light of the momentum behind participant-led research and its potential to advance health knowledge by challenging and complementing traditional research, it is vital for all stakeholders to work together in securing the conditions that will enable it to flourish.
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