Related Experiment Video
Updated: Apr 15, 2026

Involving Individuals with Developmental Language Disorder and Their Parents/Carers in Research Priority Setting
Published on: June 6, 2020
The journey to include patient and family voices
Eileen Goudy1, Mary Jackson2, Rita den Otter2
1Patient Care Experience and Accreditation, Island Health, Victoria, British Columbia, Canada. eileen.goudy@viha.ca.
Abstract:
Traditionally, the roles of patients and their families in healthcare have been passive. Despite claims of patient centredness, care design and decision-making often reflects the provider's perspective. Within Island Health, we knew that the challenges we faced were common to many healthcare organizations. We recognized that we would not be successful in changing to a patient-centred culture unless we had organizational support at the executive level for a patient and family experience strategy.
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