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Published on: January 12, 2018
Ethical decision making about end-of-life care issues by pediatric oncologists in economically diverse settings
Ana M Sanchez Varela1, Liza-Marie Johnson, Javier R Kane
1*University of North Carolina at Chapel Hill, Chapel Hill §Duke University, Durham, NC ‡Texas A&M Health Science Center, Temple, TX †St Jude Children's Research Hospital, Memphis, TN ∥Arkansas Children's Hospital, Little Rock, AR.
Purpose:
Pediatric cancer represents 1% to 4% of all cancers worldwide, with the majority of diagnoses in developing countries where mortality remains much higher than that in high-income countries. We sought to describe differences in ethical decision-making at the end of life among an international sample of pediatric oncologists practicing in countries with a variety of income levels and resource settings.
Methods:
Pediatric oncologists subscribing to an educational international oncology Web site were invited to complete a 38-item web-based survey investigating ethical domains related to end-of-life care: level of care, fiduciary responsibility, decision making, and justice.
Results:
Responses were received from 401 physicians in 83 countries, with most respondents practicing in middle-income or high-income countries. Significant differences in attitudes toward ethical issues existed across the national developmental indices.
Conclusions:
Further education on ethical principles is warranted in pediatric oncology, particularly among oncologists practicing in low-income or middle-income countries.
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