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A perspective on web-based information for patients with chronic lung disease
Donald A Mahler1,2, Richard A Petrone3, Daniel B Krocker3
11 Geisel School of Medicine at Dartmouth, Hanover, New Hampshire.
Annals of the American Thoracic Society
|April 30, 2015
Summary
Patients with chronic lung diseases like asthma and COPD can find reliable online health information. Healthcare providers can guide patients to trusted internet resources to supplement medical advice.
Area of Science:
- Pulmonary Medicine
- Health Informatics
- Patient Education
Background:
- Medical appointments often lack sufficient time for comprehensive patient education on chronic diseases.
- Patients increasingly seek health information online, especially those with chronic conditions.
- Healthcare providers need to be aware of reliable internet resources for patient guidance.
Purpose of the Study:
- To summarize major patient-focused online resources for asthma, COPD, and idiopathic pulmonary fibrosis.
- To describe novel websites offering user-friendly COPD information.
- To highlight the role of online resources in complementing professional medical advice.
Main Methods:
- Review and categorization of websites providing patient-focused medical information on common lung diseases.
- Identification of website sponsors including pharmaceutical companies, professional organizations, government institutes, healthcare organizations, and patient groups.
- Description of three new COPD-specific websites developed through partnerships or by respiratory health professionals.
Main Results:
- Numerous online resources exist for patients with lung diseases, categorized by their sponsors.
- Newer COPD websites focus on user-friendliness and individual patient needs.
- Online platforms offer a valuable 'marketplace' for health information access.
Conclusions:
- Online resources can effectively supplement traditional healthcare by filling educational gaps for patients with chronic lung diseases.
- Healthcare professionals can enhance patient care by recommending credible online resources.
- The internet serves as a crucial tool for patient knowledge transformation and informed health management.
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