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The impact of pediatric brachial plexus injury on families
Emily Louden1, Allison Allgier1, Myra Overton1
1Brachial Plexus Center, Cincinnati Children's Hospital Medical Center, Cincinnati, OH.
Insights
Brachial plexus injuries (BPIs) significantly impact families, particularly financially and socially. A multidisciplinary team approach is crucial for addressing the diverse needs of children with BPIs and their families.
Area of Science:
- Pediatric Medicine
- Rehabilitation Science
- Family Studies
Background:
- Brachial plexus injuries (BPIs) in children can lead to significant challenges for families.
- Understanding the multifaceted impact of BPIs is essential for providing comprehensive care.
Purpose of the Study:
- To determine the impact of pediatric brachial plexus injuries on families.
- To identify clinical and social needs of affected families.
Main Methods:
- Cross-sectional study involving 102 caregivers of children (1-18 years) with BPIs.
- Utilized demographic questionnaires and the Impact on Family Scale.
- Employed factor analysis and item-total correlations to analyze family impact.
Main Results:
- Overall family impact score was 43, with financial and travel-related factors showing the strongest correlation.
- Personal strain, family/social factors, financial stress, and mastery were identified dimensions of impact.
- Injury severity had a marginal correlation with family impact.
Conclusions:
- Families experience diverse impacts from pediatric BPIs, including financial strain and personal challenges.
- A multidisciplinary care team should address these varied impacts throughout treatment.
- Addressing family needs is integral to managing pediatric BPIs effectively.
Purpose:
To determine the impact of brachial plexus injuries on families to best meet their clinical and social needs.
Methods:
Our cross-sectional study included families with children between the ages of 1 and 18 years with birth or non-neonatal brachial plexus injuries (BPIs). The consenting parent or guardian completed a demographic questionnaire and the validated Impact on Family Scale during a single assessment. Total scores can range from 0 to 100, with the higher the score indicating a higher impact on the family. Factor analysis and item-total correlations were used to examine structure, individual items, and dimensions of family impact.
Results:
A total of 102 caregivers participated. Overall, families perceived various dimensions of impact on having a child with a BPI. Total family impact was 43. The 2 individual items correlating most strongly with the overall total score were from the financial dimension of the Impact on Family Scale. The strongest demographic relationship was traveling nationally for care and treatment of the BPI. Severity of injury was marginally correlated with impact on the family. Parent-child agreement about the severity of the illness was relatively high.
Conclusions:
Caretakers of children with a BPI perceived impact on their families in the form of personal strain, family/social factors, financial stress, and mastery. A multidisciplinary clinical care team should address the various realms of impact on family throughout the course of treatment.
Type Of Study/Level Of Evidence:
Prognostic II.
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