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Activity of the alpha-1 antitrypsin deficiency registry in Belgium
Jacques Hutsebaut1, Wim Janssens, Renaud Louis
1Hôpitaux Iris Sud, Département de Médecine Interne, Service de Pneumologie , Brussels , Belgium.
COPD
|May 5, 2015
Abstract:
A Belgian alpha-1-antitrypsin (AAT) deficiency registry has been established in 2003. Currently 55 patients are included. At the same time, a working group has been set up for publishing national guidelines. In 2014, several Belgian patients founded Alpha-1 Global. We hope that the integrated activities of all the stakeholders involved in AAT deficiency will permit a high quality care for all patients suffering from this disabling disease.
