Sexual function in adult patients with classic bladder exstrophy: A multicenter study.

Area of Science:

• Urology
• Reproductive Medicine
• Psychology

Background:

• Bladder exstrophy-epispadias complex (BEEC) encompasses severe urorectal malformations impacting continence, sexual, and renal functions.
• BEEC significantly affects patients' quality of life, with long-term distress often linked to functional impairments.

Purpose of the Study:

• To investigate sexual function and psychological adaptation in adult patients with bladder exstrophy (BE).
• To identify BEEC-related sources of distress impacting long-term outcomes, particularly concerning genital function and sexuality.

Main Methods:

• A multicenter study assessed 52 adult patients (13 female, 39 male) with classic bladder exstrophy (BE) using a self-developed questionnaire.
• The questionnaire focused on sexual function, psychosexual, and psychosocial outcomes.

Main Results:

• 92% of females and 64% of males responded to sexual function questions; 50% of females and 92% of males reported masturbation.
• Females reported higher rates of dyspareunia (50%) and orgasm (67%), while males reported pain during erection (8%) and ejaculation (72%).
• Few patients were in committed partnerships; many expressed concerns about satisfactory sexuality and lasting relationships, highlighting impaired sexual activity and relationships.

Conclusions:

• Treatment and follow-up for BEEC/BE patients must prioritize both physical and psychological care to enhance quality of life.
• Physicians should provide lifelong care and re-evaluate their preconceptions regarding the comprehensive needs of these patients.